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Home Cystic Fibrosis Program

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The Paragon Home Infusion Therapy (HIT) division allows individuals to receive the specialty care they need in the comfort of their own home. Our Cystic Fibrosis (CF) Program treats patients with chronic progressive pulmonary symptoms like difficulty breathing, infections, inflammation, and respiratory failure.

Cystic Fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. It also can impact the pancreas, liver, and sinuses leading to other complications such as malnutrition, poor growth, or liver disease. Cystic Fibrosis occurs due to abnormalities in a protein called CFTR (cystic fibrosis transmembrane conductance regulator). This protein acts as a chloride channel and a regulator of sodium. Chloride is part of the body's electrolyte balance. Chloride combines with sodium to form the salt found in sweat. The test to determine if someone has CF is called a "sweat chloride test." 

 

Cystic Fibrosis symptoms may include:

  • Persistent coughing, at times with blood or phlegm
  • Frequent lung infections including pneumonia or bronchitis
  • Wheezing or shortness of breath
  • Fatigue or inability to exercise
  • Pain in the abdomen
  • Very salty sweat
  • Poor growth or weight gain despite a good appetite
  • Gastrointestinal issues such as fatty stools, constipation, or heartburn
  • Male infertility
  • And more

 

The patients in our Cystic Fibrosis Program may require:

  • IV Antibiotics
  • Inhaled Antibiotics
  • Nutrition Support

 

According to the Cystic Fibrosis Foundation Patient Registry, in the United States:

  • More than 30,000 people are living with Cystic Fibrosis (more than 70,000 worldwide)
  • Approximately 1,000 new cases of Cystic Fibrosis are diagnosed each year
  • More than 75 percent of people with Cystic Fibrosis are diagnosed by age 2
  • More than half of the Cystic Fibrosis population is age 18 or older

 

Life with Cystic Fibrosis can be challenging and taxing on a person. It impacts individuals differently based on factors such as their age or lifestyle. Our heart is to bring comfort to infusion care and simplify the healthcare process for the patients we serve regardless of their stage in life. Since each person’s health situation is unique, we focus on customizing each care plan to meet the needs and lifestyle of the individual.

Our nurses are experienced in cystic fibrosis management and trained to maximize therapy outcomes. Whether the patient is an adult, a teen transitioning to adulthood, or a parent of a child with Cystic Fibrosis, Paragon is here to help by providing education for our home therapies. We also have a team of pharmacists and registered dietitians available to collaborate with the CF Care Center Physicians and Teams. 

We simplify infusion administration by using Elastomeric Devices to deliver anti-infective medication through an intravenous (IV) line. These pumps are small, lightweight, and portable. They can be carried in a pouch or even sometimes a pocket. They hold the medication in a balloon-like chamber that delivers the medicine at a safe and steady rate without the need for gravity (meaning no IV poles), mechanical pumps, batteries, or programming.

Elastomeric Devices are the preferred administration method by physicians, patients, and nurses. We use them with our patients because they are easy to learn how to use, which increases therapy compliance. Our nurses are compassionate and patient, taking the time to ensure each patient is comfortable administering their medication on their own at home. Each one of our nurses serves as a clinical resource, and is able to answer questions about the drug, treatment, infusion pumps, and more. We also have a pharmacist on-call 24/7 to provide assistance or answer any questions a patient may have.

If you or a loved one are seeking a healthcare company that puts people first, focusing on comfort and specializing in infusion care in the home setting, tell your provider that you want to join the Paragon family. We’ll handle the rest of the referral process and reach out to you directly to follow up.

 

For more information about Paragon Home Infusion Therapy, visit our website at www.paragonhealthcare.com/hit.

 

Additional Resources:

 

American Lung Association – An organization working to save lives by improving health and preventing lung disease through research, education, and advocacy. They focus on four initiatives: defeating lung cancer, championing clean air for all, improving the quality of life for those with lung disease and their families, and creating a tobacco-free future. https://www.lung.org/lung-health-diseases/lung-disease-lookup/cystic-fibrosis/symptoms-diagnosis

 

Cystic Fibrosis Foundation – Dedicated to improving the daily lives of people with Cystic Fibrosis. They help people with affording care, finding a specialist, and staying healthy with Cystic Fibrosis. https://www.cff.org/Life-With-CF/Daily-Life/Adult-Guide-to-CF.pdf

 

The Paragon Healthcare, Inc. blog provides general information and discussions about health and related subjects. The information and other content provided in this blog, or in any linked materials, are not intended and should not be construed as medical advice, nor is the information a substitute for professional medical expertise or treatment. If you or someone you know has a medical concern, you should consult with your health care provider or seek professional medical treatment. Never disregard professional medical advice or delay in seeking professional treatment because of something that you have read on this blog or in any linked materials. If you think you may have a medical emergency, call your doctor or emergency services immediately. The opinions and views expressed on this blog and website have no relation to those of any academic, hospital, health practice, or other institution.
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