Our Paragon Bleeding Disorder Division is here to provide patients with support and resources. Here are some especially helpful resources for if you or a loved one have a bleeding disorder and are learning how to navigate through what this means.
Hope for Hemophilia is a 501(c)(3) non-profit organization established to be a giver of hope, strength, and resources. They have been helping people living with hemophilia and their families through seasons of crisis since 2009 with financial, emotional, and practical support.
Hope was founded by friends who surrounded one family in a crisis caused by hemophilia. It is their goal to pay that friendship forward. They are working tirelessly to bring hope to a community of incredible people who face some of the most painful, scary, and lonely seasons throughout their lifetime. They believe together we can help these families win.
Hope for Hemophilia is a nationwide organization and works with patients directly to help them find resources when they need it most. They offer a patient resource program that serves hemophilia families by educating and navigating resources tailored to their needs. They provide guidance on appropriate resources such as Helping Hands, PSI, Co-pay assistance and Compassion programs, Scholarship programs, and other assistance programs while maintaining a strict standard of patient confidentiality. Hope also helps patients discover and navigate assistance with national and local programs that are not hemophilia specific but can help families in difficult seasons. They walk patients through the programs they may qualify for and provide guidance on using United Way, Medicaid, Food Stamp Programs, Social Security Disability, Habitat for Humanity, local food banks, and other local community charities.
Hope also offers a direct financial assistance program designed to help individuals and families who are in a crisis caused by hemophilia nationwide. Many of the families we help are either in the hospital, just getting out of the hospital, or have been through a prolonged season of bleeding causing them to face surgery. We define "crisis caused by hemophilia" as a crisis that is directly related to hemophilia. In other words, we ask ourselves the questions, "Is this a crisis or a personal need?" and "Was hemophilia the reason for this crisis?"
Hemophilia Federation of America, Inc. (HFA) is a patient education, services, and advocacy organization serving the rare bleeding disorders community. They focus on the bleeding disorders patient and caregiver community. The vision of the Hemophilia Federation of America is to improve the care and quality of life for all people with bleeding disorders by removing barriers to diagnosis, treatment, and cure.
HFA's Key Objectives:
National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy, and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations, and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
NHF's broad range of programs and services include:
Wherever you are on your journey, we're here to support you. We are here to provide resources, guidance, treatment, and more to the Bleeding Disorder Community. For more information about joining the Paragon family, visit https://paragonhealthcare.com/hemo/.